Saturday, December 27, 2008
Lots of happenings
Tuesday, December 9, 2008
Back to a somewhat normal life
Thanksgiving was very memorable. We went to my parents house for dinner which was amazing. My Mom can cook. We had ham and turkey and all the fixins of course. My brother and his family was their as well. We decided we needed to take a family picture since it had been so long since we had taken one ...which I think means we have never really taken a family picture. Anyway, we went out onto my parents porch to gather for the picture and the neighbor decides now would be a good time to come over and visit and say "thanks" to my mom for the nice dinner she took over to his house. Well, he came right as we were about to take this long overdue family picture and for some reason just couldn't get the very large "HINT" we were giving him and well we now have a new member of our "family" in this first picture we are all laughing so hard that we just couldn't stop even for the picture. Michael the neighbor is the one peeking over katie's head in the middle back.
So yeah, here we are totally laughing our faces off, especially my family. Katie was especially wierded out by the neighbor she said "it looks like he is about to eat me"We did finally get a "good" picture without Michael the neighbor.
Monday, November 3, 2008
Prop 8
Saturday, October 11, 2008
Rheumatoid Arthritis
The most prevalent form of juvenile arthritis is juvenile rheumatoid arthritis, or JRA. It affects approximately 50,000 children in the United States. JRA also called juvenile idiopathic arthritis (JIA) because it is very different from adult rheumatoid arthritis.
What Causes JRA?
It's not known exactly what causes JRA in kids. Research indicates that it is an autoimmune disease. In autoimmune diseases, white blood cells lose the ability to tell the difference between the body's own healthy cells and harmful invaders like bacteria and viruses. The immune system, which is supposed to protect the body from these harmful invaders, instead releases chemicals that can damage healthy tissues and cause inflammation and pain.
To effectively manage and minimize the effects of arthritis, an early and accurate diagnosis is essential. By understanding the symptoms and characteristics of each type of JRA, you can help your child maintain an active, productive lifestyle.
Types of Juvenile Rheumatoid Arthritis
Typically, juvenile rheumatoid arthritis appears between the ages of 6 months and 16 years. The first signs often are joint pain or swelling and reddened or warm joints. Many rheumatologists (doctors specializing in joint disorders) find that the greater the number of joints affected, the more severe the disease and the less likely that the symptoms will eventually go into total remission.
The three major types of juvenile rheumatoid arthritis are:
Oligoarticular JRA, which affects four or fewer joints. Symptoms include pain, stiffness, or swelling in the joints. The knee and wrist joints are the most commonly affected. An inflammation of the iris (the colored area of the eye) may occur with or without active joint symptoms. This inflammation, called iridocyclitis, iritis, or uveitis, can be detected early by an ophthalmologist.
Polyarticular arthritis, which affects more girls than boys. Symptoms include swelling or pain in five or more joints. The small joints of the hands are affected as well as the weight-bearing joints such as the knees, hips, ankles, feet, and neck. In addition, a low-grade fever may appear, as well as bumps or nodules on the body on areas subjected to pressure from sitting or leaning.
Systemic JRA, which affects the whole body. Symptoms include high fevers that often increase in the evenings and then may suddenly drop to normal. During the onset of fever, the child may feel very ill, appear pale, or develop a rash. The rash may suddenly disappear and then quickly appear again. The spleen and lymph nodes may also become enlarged. Eventually many of the body's joints are affected by swelling, pain, and stiffness.
Signs and Symptoms
The first signs of arthritis can be subtle or obvious. Signs may include limping or a sore wrist, finger, or knee. Joints may suddenly swell and remain enlarged. Stiffness in the neck, hips, or other joints can also occur. Rashes may suddenly appear and disappear, developing in one area and then another. High fevers that tend to spike in the evenings and suddenly disappear are characteristic of systemic juvenile rheumatoid arthritis.
I was suprised to learn that is not all that uncommon for young children to have this disease. It mostly effects women and most commonly begins between 30 and 50. Men do get it but less often, and there symptoms are generally more severe. Ciara also has psorisis and so this is probably connected. And she probably actually has something that is called psoratic arthritis which is the same thing and is treated the same as RA.
Ciara's RA at first was just affecting her hands, fingers and wrists but is now is beginning to travel to her hips, knees, & back. Mornings are especially hard for her and are when she has the most pain. As the day goes on she does feel better but the pain never completely goes away. It is like at 15 year old living in an 85 year old body. Her rheumatoligist wants to begin some very agressive treatment. This should hopefully help with the pain and increase her movement. The scary part is the drug he wants to prescribe to her is actually a drug used in chemotherapy. Methotrexate is given to cancer patients but is also the "gold standard" in RA treatment. We have to weigh the benefits against the side affects: nausea, hair loss, mouth ulcers, liver damage etc. Her Dr. says that she would be on a very low dose and shouldn't incur the hair loss or liver damage. If she did begin to lose her hair we would stop using that drug and he would be monitoring her liver to make sure it was functioning properly and that there was no damage.
It is hard as a parent to see your child in pain everyday and Ciara just wants the pain to stop. So, we have to make the decision of what to do for you her....let her continue with the her current treatment which seems to not be working so well or give her a very toxic drug which has really bad side affects.
If anyone who reads this has any experience with RA I would love to hear from you. And we would also appreciate any prayers you could send our way as we try to come up with the best treatment plan for Ciara.
Monday, September 15, 2008
Utah Trip
This is a picture at one of the many rest areas we stopped at. Ciara ran up to the top of hill where you can see those rocks way in the back.
Katie's kitchen and living room. As you can tell it is pretty small. She has been doing alot of cooking though. She made meatloaf one of the first nights for all her roomies and a couple of other friends. It was a big hit. Her and roomies often cook together. Katie is also taking a cooking class which she is pretty exicited about.
Here we are trying to help Katie find where her classes are the day before her first day of classes.
Yeah, I guess we all have very different opinions on where she needs to go. We also made a trip to the bookstore. Can you say "expensive"? I can't believe how much books cost. Just for one of katies' classes the books were $300.
The trip was fun. It was so great to get to see Courtney and Katie. They went back to Provo in June to work and so I hadn't seen them in 3 months. They are both doing so great. Both love school and feel really blessed to be able to be at BYU.
Saturday, September 6, 2008
Crazy for Noteworthy
We are also so exicited because it looks like Noteworthy will coming to Sacramento in November to perform -- we will defitnely keep you posted on that and let you all know for sure.
I also need to post about my trip to Utah. I need to download the picture and then I will post.
Monday, August 25, 2008
Back to school
I am already tired of it . . . even though today was the first day! ha, ha.
I am excited though about heading back to Utah to see my girls. I miss them so much. I will be gone for a week and Ciara is coming with me. It will be a fun girls week!. I will be taking all of Katies "stuff" that she needs to move into her dorm. She will be living in Heritage Halls, Fox Hall #49. I am very excited for her to start this whole new phase of life. Even though it is very sad for me. I know she will be great. I am also excited to see Courtney. She is a pro at this whole college thing now. This is the beginning of her Senior year -- how fast the time has flown by. I really can't believe she is a Senior. It seems like she just graduated from high school. I am also excited for a new year of Noteworthy.
I have also just gone back to work at the County. I'm not gonna lie that I really don't want to be there for this election. It is going to be so busy it frightens me. Between the Presidential election and prop 8 we will have our work cut out for us. I am pretty sure every crazy person in Sacrmamento county will be calling or coming in! Pray for me.
Well, I guess we have to have Fall, Winter, Spring so we can appreciate Summer that much more.
Bye -- Summer -- I will miss you. See you about 9 months.
Cindy
Wednesday, July 30, 2008
Update Summer 2008
Ciara and some of her YCL friends
Ciara and cousin Tyler
David
Once again we were involved with the Strauss Festival. This was my 20th year. I can't believe it has been that long. Here are a few pictures.
Ciara danced with the Polka troupe again. This is her second year.
Ciara is the one in the yellow skirt. The ribbon dance was the best dance in the show. Polka rocks!
Thursday, March 27, 2008
Easter and Noteworthy
The family -- of course my eyes were closed in all the pictures. PS Courtney painted the hat that David is wearing.
The kids-- they are beautiful aren't they?
It was a perfect day for a family easter party. We had so much fun. Everyone is growing up so fast.